narcolepsy

I stumbled upon this interesting series of interviews with narcoleptics in the New York Times. I don't think about being a narcoleptic much. Since finding medication to alleviate most of the sleepiness my life is so much more manageable.

It's a weird disorder and kind of funny. Not as funny untreated, though. Untreated it's a ball and chain.

chatty cathy

It is difficult to tease out whether this is just the upper half of my normal loquacious cycle or the result of the quarterly switch-over of sleep-disorder meds. I'm leaning towards the latter. Why? Because then it's not some cracked-out aspect of my personality...it's just the speed.

However charming or witty or urbane I may have been today, I wish I could just shut-the-hell-up because I'm a exhausted with sound of my brain churning out thoughts and my mouth trying to keep up with the deluge.

renegade ex-mormon with coffee

Letter I recently wrote to my daughter:

as luck or coincidence would have it, the science of sleep came up in my netflix queue and arrived the same week as the 25th "anniversary of my wakefulness." June 14th, 1982: i was told i had narcolepsy and that diagnosis (and treatment) marked a dramatic change in my life.

but i never stopped loving the feeling of falling asleep.

the movie was enchanting. especially the corrugated cardboardness of it all. and how could one not delight in cotton-turned-clouds? anyway, it's making me rethink my "chaos" and how much i love having creative materials around me.

love,
mom

Narcolepsy is comedy fodder. And it should be. It's a quirky disorder that doesn't kill you but can muffle much of life's bright color if undiagnosed. But, it is a funny problem. I am grateful to the quacky internist who suggested that I might have a sleep disorder. I would have been hard-pressed to accomplish a third of what I have done in my life thus far, in that sleepy state.

Re: this post's title
Having been raised Mormon, I was ironically barred from the only non-prescription and universally available stimulant: caffeine. When I discovered coffee after my diagnosis (it was the only alternative to prescription drugs that were not an option while breast-feeding aforementioned daughter in her infancy) my system seized upon this substance. I was AMAZINGLY awake. And my virginal digestive system was in an uproar. Good times.