parental units

My father's bladder cancer is back. He stopped treatment 5 years ago because...well, because it was painful and he is not logical sometimes. He just didn't want to deal with it. Maybe it would have come back anyway had he completed treatment or maybe it wouldn't have but it seems that ignoring it did not do the trick.

He's depressed and in pain. He's self-medicating and not quite in the present all the time. We're flying into Tampa to visit him this week. Hurricane Isaac and the Republican National Convention are also going to Tampa but that's just a coincidence. A rather shitty coincidence.

My mom seems anxious and stressed. She's normally pretty pragmatic and solid, so it's hard to hear that. She also seems uncharacteristically selfish about my time there. So peculiar. I was such a mama's girl; I would have given anything for her to show that she liked having me around when I was young so it's a bit...unsettling, but warms my heart nevertheless.

I'm concerned...but he is relatively healthy so there is reason to be hopeful.

squiddy transformed

Any question why we nicknamed it Squiddy?

Last Saturday marked one year since Barbara concluded her radiation therapy, so October 1st has become her cancer-free anniversary. I took her "Mammosite" (radiation device we affectionately named "Squiddy") and turned it into a bouquet to mark the occasion.

Some of you may find this gross, I know. Therein lies one difference between us. The technology and materials of medical procedures are endlessly fascinating to me and the fact that it was once inside her body (doing important work, I might add) only makes it more fascinating.

Some people beat weapons into plough shares,
I choose to transform medical devices into nosegays.

Besides, she loved the transformation. Before she even knew that it was Squiddy in disguise, seeing the small vase of her favorite color (purple) flowers brought tears to her eyes.

The fear of losing her remains an undercurrent so powerful that it (uncharacteristically) moves me to suppression. No desire to delve into the murky depth of my soul, no need to analyze and dissect. I don't live my life in constant angst but whenever I think of that time it's as if I'm teetering at the opening of Jonah's whale. I am sure I don't adequately express to her the depth of my relief at her presence. Every day.

Squiddy served us well, and deserves to be decorated.

the wait

I'm intrigued by how people wile away their time when they're anxious...forced to wait for news and unable to speed that process along.

Some people pace. Some can't focus. Some externalize their anxiety onto people around them. Some work in their gardens. Other people clean out their closets. Some just drink.

Me? I bury myself in minutiae. Not big effort chores like closet cleaning–that would be way too productive. No, I clean my jewelry and other micro-tasks that employ toothpicks as tools. I organize bits of things. Then, I archive my email inbox. I paint my toenails.

Over the past month or so, we've been in the déjà vu land of waiting for medical test results. Barbara's first mammogram since surgery was not clear sailing. They saw two small masses on her right breast (Lefty is, to our great relief, still cancer-free) that they were almost sure were nothing but fibroids but an ultrasound was recommended which results led to two needle biopsies last Friday. Still they remained almost sure it wasn't cancer.

Eight months after a partial mastectomy, the space between almost and absolutely is cavernous. The word biopsy weighs a ton.

I waited to write until we knew and now we know, she is fine. Both growths are benign. The relief is almost hard to grasp. The first time on the cancer flywheel you're terrified because you don't know how scary it will be. The second time you're terrified because you do.

But she's fine. Wonderful. Whole. Life feels lighter and hopeful once again.

In the meantime, my watch is sparkling clean and damn near 2700 emails were deleted or archived. My toenails, however, look like they were painted by an angry four year-old. I'll have to channel that anxiety into another activity next time.

P.S. Thanks to my dear friends who remind me that they are also waiting. Waiting for me to sit my ass down and write an entry or two. Peter, it was so good to hear from you.

marsha

Grocery shopping has become an exercise in vanity-stripping for me. I've bribed myself to leave the house for this chore by tossing, one-by-one, my morning rituals. First, it was jewelry (I mean, who the hell needs earrings to decide between generic vs name-brand?), then, the morning shower got ditched (I can do that later), after that, hair and makeup left the room. I'm lucky if I wet down the sleep cowlicks before trudging out of the house. This is not to say I ever glammed-up before going to the grocery store, it's just that "presentable" has taken on a new, scaled-down meaning for me. It's liberating. Though I do draw the line at oral hygiene. Until they're in a cup by the bed, my teeth will get brushed before I head out.

Sunday found us leaving the house later than usual. I am not interested in becoming a raving, bitter lunatic in my dotage, so shopping before the I'm elbow-to-elbow with the dawdling, cell-phone-shackled, oblivious masses parked in the middle of the aisles is the gift I give to humanity. Shop early, save a life. But we had been quite productive that morning, annual online Christmas shopping just about completed in one weekend, so I was good with the delay.

We got fresh fruits and vegetable (post-Thanksgiving-leftover-sludge remedy) at the Farmer's Market. I still need to figure out what one does with kohlrabi. We were finishing up at the regular grocery store (we split up to get out the door faster) and I came around the corner and almost bumped into an old friend. I'll call her Jill (which is, coincidentally, her name). I hadn't seen Jill in maybe 10 years. It's not that we don't live in the same city, it's just that the "hub" friend who connected Barbara and I to Jill and several other couples had sort of walked away from me (or so it seemed, though not for lack of trying on my part) and we just didn't socialize outside this group.

I was strangely okay with looking like shit. (During the course of shopping I must have lifted something that left what looked like pumpkin bread smeared all over the front of my hoodie…which I discovered afterwards and was not so okay with. Jesuschrist.) Jill looked the same, grayer but still youthful and…I don't know, professional. We chatted for a minute and she said, so you haven't heard about Marsha? I hate when an old friend/acquaintance says stuff like this...though there are no cheerful ways of bringing up a tragedy you've missed. Marsha was dead. Since 9 months ago. Complications from ovarian cancer. She was 5 years younger than me and she and her partner seemed like two of the happiest lesbian couples I've ever met. A flicker of survivor's guilt passed and I asked about her partner. She was, no surprise, suffering. Holidays intensifying what was a colossal loss.

Jill and I exchanged give-your-partner-a-hug-from-me niceties and I went to find Barbara who had finished the rest of the shopping list while I was chatting. I felt stunned. Marsha was sweet. A bit overly competitive in softball and kind of a top-button-buttoned kind of gal but smart and good and dear. Her bereaved partner even sweeter.

That's it. Another friend dies and I learn about it long after the fact...though I guess it doesn't matter when you find out, we're all alone when we grieve.

Good-bye, Marsha.

barbara

One of the comforts of atheism is that you never shake your fist at God when things go wrong. Likewise you can't be patting your righteous self on the back when Fate throws you a bone. It is comforting. The randomness is easier to believe. There is no guilt or pride. Just Fuck, I wish this hadn’t happened or Hooray! at finding a $20 bill.

My kind-hearted, funny, wonderful Barbara of the Lovely Mammaries has breast cancer. It’s been just over 2 weeks since the call came. 2 weeks since a routine mammogram turned into presence of calcification turned into a needle biopsy turned into a positive diagnosis for cancer turned into a partial mastectomy turned into genetic testing and radiation.

The intial news, as I once imagined and now know, is chock full of shock and pain and numbness. And what ifs and the deafening lyrics of songs:

“Beloved Wife”
by Natalie Merchant

You were the love
For certain of my life
You were simply my beloved wife
I don't know for certain
How I’ll live my life
Now alone without my beloved wife
My beloved wife

I can’t believe
I’ve lost the very best of me

You were the love
For certain of my life
For fifty years simply my beloved wife
With another love I'll never lie again
It’s you I can’t deny
It's you I can’t defy
A depth so deep into my grief
Without my beloved soul
I renounce my life
As my right
Now alone without my beloved wife
My beloved wife
My beloved wife

My love is gone she suffered long
In hours of pain

My love is gone
Now my suffering begins

My love is gone
Would it be wrong if I should
Surrender all the joy in my life
Go with her tonight?

My love is gone she suffered long
In hours of pain

My love is gone
Would it be wrong if I should
Just turn my face away from the light
Go with her tonight?

(I have never liked the word “wife” as it represented something I felt I’d left behind. But for all intents and purposes, I have no stronger word for who she is to me after these short 24 years.)

When my meltdown and crying jags subsided that evening, all that was left was her buoyant optimism and the need to look this nightmare in the face and devise a plan. Most of the good news in the bad news was very good. Small, caught early* and contained.

*annual mammograms...just get them.

I can’t go into all the specifics now. It’s an education in oncology borne of controlled-panic-necessity and not my usual fact-absorbing-delight. She’s doing very well. Hopes are high and the partial mastectomy (remember the first “t”) was successful. No cancer cells detected in the “margins.”

In the chaos of remodeling and anxiety of fiscal bedlam and anticipation of my dear parents’ arrival and uproar at work, the lens focuses sharply on her sweet face and the rest is a blur. My gentle, strong, amazing guapa. She is the love, for certain, of my life...she is simply my beloved wife.

Fuck, I wish this hadn’t happened.